Merry Christmas everyone! Hope that you are having a wonderful holiday. Madison enjoyed her first official Christmas today, we opened presents with my sister, her fiancé, and my parents yesterday, but this morning was just the three of us. Next year will be funner because Madison will know what is going on a little bit better.
On the 21st as you may or may not have know Madison had her surgery for her hernia. It was one of those days where nothing seemed to go right. First off, Madison was supposed to stop eating at 4:30am so we set two alarms so that we could get up and feed her so that she wouldn't be too hungry. However, Tyler and I were so tired that we ended up turning off the alarms and falling back asleep. So poor Madison hadn't eaten anything since 11pm the night before. Also, we slept so much that we didn't get up until 5:30am which was the time that we were supposed to be LEAVING, so we had enough time to change Madison and put her into her car seat. Gosh sometimes we are bad parents. So we finally get to the Children's Hospital and Madison is crying because she is so hungry, and we finally get her to fall asleep and as soon as we do, the lab comes to take some blood! At 8:30 they take her into the operating room, for some reason as soon as the anesthesiologist came to see her she was all smiles, which made it so much easier on us when they took her away to the operating room. Tyler and I went to the waiting room, and we were later joined by my parents who stayed with us the whole time. Around 11:00am Dr. Ecceles came and told us that everything went fine and that she would most definitely be going home that day. Dr. Ecceles also told us that Madison did end up having a hernia on both sides so she had both repaired. Dr. Ecceles told us that the anesthesiologist was just removing Madison's breathing tube and then we would be able to go and see her. What a relief...or so we thought... Not even 10 minutes later the anesthesiologist comes out and tells Tyler (I was downstairs meeting with occupational therapy), that he is unable to wake up Madison. He said that Madison was not metabolizing the medication like she was supposed to, and that he didn't know how long it would be until she did wake up. He also told Tyler that Madison was going to be transfered to the pediatric intensive care unit because her breathing tube cannot be removed until she wakes up.
Then about 20 minutes later the anesthesiologist comes back and tell us that Madison has woken up, and that in a few minutes we can both go in a see her. 20 minutes later only I was allowed to go in and see her. I went into the recovery room and I didn't know where to go until I heard a cry, and very familiar cry, but just a little hoarse, and there was my baby. She was so pale, and she looked so sad. It was hard to see her like that, but a least she was awake. I was allowed to hold her, and feed her but she was so upset and tired that she wouldn't latch. I gave her a bottle and that seemed to settle her, but during her feedings her oxygen dropped so they had to put prongs into her nose. She had an IV in her foot that looked so painful, but she wasn't moving her legs at all so I knew that her spinal was still numbing her waist down. After about 30 minutes in the recovery room, we were transferred to the day surgery unit (she no longer need to go to the PICU). Tyler, and my parents were already there waiting. Madison looked so sad that I am pretty sure all of us cried. For the rest of the day Madison just slept and cried for food. Her oxygen would drop too low for her to be on room air, so they kept the oxygen in her nose for quite some time. Later in the evening when she started to be more like herself again, she oxygen levels were much better. At 8:00 pm they let her go home.
Since then she hasn't seemed to be in any pain, or have any problems with her two incisions, but we still have to be careful. I just cannot believe what she has gone through in her life already, it is so much more then I have gone through. She is so strong and she doesn't even know it. Thanks for all of your prayers and love.
Saturday, December 25, 2010
Monday, December 13, 2010
Sorry Nancy it's not a Sunday!
Hi,
So here is what is new, Madison needs to have her hernia repaired A.S.A.P. so they are going to do the surgery on December 21st. Dr. Ecceles said that groin hernia repairs are her number one elective surgery that she does so the actual surgery shouldn't be an issue. However, the anesthetic is the bigger concern because of the fact that Madison's omphalocele has caused her respiratory system to be a little bit different then "normal" babies, so they are concerned about putting her out. I met with the anesthesiologist today and he said that they will most likely put her out with gas, and then put a tube down her throat to help her breathe, and then they will also give her a spinal epidural which is similar to the regular kind of epidural given during childbirth, but a little different because they don't put the needle in as far. The spinal will numb her from the waist down and it will also help with pain management after surgery because they are concerned about giving her Tylenol because of her liver function. The anesthesiologist is concerned about her breathing after the surgery, so they will most likely keep her overnight just to keep an eye on her, especially because we live so far away from the hospital. So please pray for Madison, and wish her luck.
On a different note, I just would like to thank all of the people at the Innisfail Lab for throwing a surprise shower for me last Thursday. I really appreciated it, and it was perfect timing! I love you all so much!
Also good luck to Nicole and Bentley tomorrow!!!! So excited for you!!! I hope everything goes well for you! We will pray for you and your family, soon to be plus one!!!
So here is what is new, Madison needs to have her hernia repaired A.S.A.P. so they are going to do the surgery on December 21st. Dr. Ecceles said that groin hernia repairs are her number one elective surgery that she does so the actual surgery shouldn't be an issue. However, the anesthetic is the bigger concern because of the fact that Madison's omphalocele has caused her respiratory system to be a little bit different then "normal" babies, so they are concerned about putting her out. I met with the anesthesiologist today and he said that they will most likely put her out with gas, and then put a tube down her throat to help her breathe, and then they will also give her a spinal epidural which is similar to the regular kind of epidural given during childbirth, but a little different because they don't put the needle in as far. The spinal will numb her from the waist down and it will also help with pain management after surgery because they are concerned about giving her Tylenol because of her liver function. The anesthesiologist is concerned about her breathing after the surgery, so they will most likely keep her overnight just to keep an eye on her, especially because we live so far away from the hospital. So please pray for Madison, and wish her luck.
On a different note, I just would like to thank all of the people at the Innisfail Lab for throwing a surprise shower for me last Thursday. I really appreciated it, and it was perfect timing! I love you all so much!
Also good luck to Nicole and Bentley tomorrow!!!! So excited for you!!! I hope everything goes well for you! We will pray for you and your family, soon to be plus one!!!
Wednesday, December 8, 2010
Watch as Madison gives her mother a heart attack...
Hi,
Well here's what you missed, last Thursday Madison and I went for our six week check up with our family doctor. Which was supposed to be just a quick check, nothing big. However, in true Madison form, the doctor found something. A hernia in Madison's groin; it is called an inguinal hernia. The doctor was surprised that no other doctor had found it. This kind of hernia will need, you guessed it, surgery! Hopefully the surgery for the hernia and the surgery for the omphalocele can be done together, I will ask the surgeon tomorrow. Also, on Monday night everything was going just hunky dory, until...(there baaaack!!!)...white poops! OMG!! I see them and immediately started bawling my eyes out, the only think I could think of was biliary atresia...biliary atresia...liver biopsy...liver transplant...(and then more crying...you get the picture). So Tyler and I decided that it the white poops were not gone by the next day we would call the surgeon. So the next day, the big white poops were waiting for us, so I called Dr. Ecceles' office and I asked if she could see Madison today, and the receptionist said that Dr. Ecceles was on holidays. The receptionist told me to either call my family doctor or come to the emergency. So I call Dr. Hyde's office, and asked if I could leave a message for her, the her receptionist informed me that she was off for the day! Just my luck. So I packed up Miss. Madison and I also packed a bag just in case (plus if I didn't my mother would never let me hear the end of it, learnt my lesson), and we went to the children's hospital. The wait was so short and most of the people were nice(one EMT told me to move up to the sign, just so the nurses could see me, and so that if any other people came there would be room; well, the sign was less then two feet away from where I was...man, some people really just need to find real work!). Anyways, so the doctor came and asked us a bunch of questions...blah, blah, blah...then the lab came and took poor Madison's blood (which they got on the first try...finally), and then by the time all of that was done...Madison had yellow poops!!!!!!!!!!! Can you believe that...gosh, you know I really hope she knows how many times she has almost given me a heart attack!! So anyways, she has had yellow poops since then, and no one knows why that happened. So Madison and I go to see the surgeon tomorrow, and hopefully Dr. Ecceles will take off the piece of umbilical cord that has been hanging on for dear life, it has started to detach itself, it is kind of like a wiggly tooth, you want to pull it out but it is so completely disgusting that you really don't want to have to touch it! But it stinks!! Anyways, ramble ramble...I will say goodbye. I will let you know how the surgeon appointment goes. Also this week I have a special treat, I am meeting with a lady who is having a baby with a giant omphalocele tomorrow.
Well here's what you missed, last Thursday Madison and I went for our six week check up with our family doctor. Which was supposed to be just a quick check, nothing big. However, in true Madison form, the doctor found something. A hernia in Madison's groin; it is called an inguinal hernia. The doctor was surprised that no other doctor had found it. This kind of hernia will need, you guessed it, surgery! Hopefully the surgery for the hernia and the surgery for the omphalocele can be done together, I will ask the surgeon tomorrow. Also, on Monday night everything was going just hunky dory, until...(there baaaack!!!)...white poops! OMG!! I see them and immediately started bawling my eyes out, the only think I could think of was biliary atresia...biliary atresia...liver biopsy...liver transplant...(and then more crying...you get the picture). So Tyler and I decided that it the white poops were not gone by the next day we would call the surgeon. So the next day, the big white poops were waiting for us, so I called Dr. Ecceles' office and I asked if she could see Madison today, and the receptionist said that Dr. Ecceles was on holidays. The receptionist told me to either call my family doctor or come to the emergency. So I call Dr. Hyde's office, and asked if I could leave a message for her, the her receptionist informed me that she was off for the day! Just my luck. So I packed up Miss. Madison and I also packed a bag just in case (plus if I didn't my mother would never let me hear the end of it, learnt my lesson), and we went to the children's hospital. The wait was so short and most of the people were nice(one EMT told me to move up to the sign, just so the nurses could see me, and so that if any other people came there would be room; well, the sign was less then two feet away from where I was...man, some people really just need to find real work!). Anyways, so the doctor came and asked us a bunch of questions...blah, blah, blah...then the lab came and took poor Madison's blood (which they got on the first try...finally), and then by the time all of that was done...Madison had yellow poops!!!!!!!!!!! Can you believe that...gosh, you know I really hope she knows how many times she has almost given me a heart attack!! So anyways, she has had yellow poops since then, and no one knows why that happened. So Madison and I go to see the surgeon tomorrow, and hopefully Dr. Ecceles will take off the piece of umbilical cord that has been hanging on for dear life, it has started to detach itself, it is kind of like a wiggly tooth, you want to pull it out but it is so completely disgusting that you really don't want to have to touch it! But it stinks!! Anyways, ramble ramble...I will say goodbye. I will let you know how the surgeon appointment goes. Also this week I have a special treat, I am meeting with a lady who is having a baby with a giant omphalocele tomorrow.
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