This is a blog about our baby Madison who was diagnosed and born with a giant omphalocele in Calgary. This is the story of her journey from diagnosis at 20 weeks gestation, to the present day treatment of her giant omphalocele.
Thursday, October 7, 2010
Madison's first day
First off, I want to thank everyone for their comments, your care, love and support is stong, and we apreciate it. Today was sooo busy and exhausting for Madison and ourselves. Meg was not feeling well this morning, every time she tried to sit up she would get dizzy and have to lay down. She was getting upset because she wanted to see Madison so bad, but her body did not want to cooperate. After a lot of effort, determination and a couple of hours we were on our way. When we got there they were in the middle of an ultasound of her heart, and ushered us away. Meg had only seen her for a brief moment the day before, so she was understandably upset. We went back later with grandma McGuire, who jut arrived from Ontario. We got to spend a lot of quality time with her, and our day nurse was very helpful. Because of the omphalocele, we can not pick her up, but we can touch her. The omphalocele is about the size of an orange and is contained in a sac. She has gone pee and poop, so things are working, what a relief! They have her in a special little bed that has a heater, humidifer, and a roof that raises up. She is hooked up to all kinds of monitoring equipment. She ripped out two IVs until they got a pic line in, she is a little fighter! She has long fingers and long feet and a tiny little body. She is also breathing on her own which is awesome! For now they are dressing the omphalocele with some type of dressing and what looks like saran wrap! They say she is doing well. My parents came in the afternoon, and got to meet Madison for the first time. We found out that grandparents are the only ones allowed in the NICU unit, no brothers or sisters. Strict! You also have to scrub with a soapbrush for 2 min before you can enter. Anyway by the end of the day a lot of doctors and nurses had poked and handled Madison. She had a long day and was tired when we said goodnight to her. I am going to go to bed my self, it is late. Pictures will be coming when I get home, I am writing in the blog from my phone, and can't upload pics.
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I read your latest entry with great joy! To hear that Madison is breathing on her own and her body is able to take in nourishment and eliminate waste - all on her own, is fantastic! She is also proving to be a brave fighter like her parents - ripping out IV's (I don't blame her one bit!)
ReplyDeleteWe wish Meaghan a speedy recovery and that the three of you can spend some very special time together today!
Tons and Tons of Love, Great Uncle John & Great Aunt Dalphine
Dear Madison: You go girl ... your great-aunt is so thrilled to hear you’re a fighter. Ripping out your IV, wow, you’re one tough cookie!!
ReplyDeleteDear Meaghan: Hope you’re feeling better! I wish I was there to give you an extra big hug. Make sure Tyler gives you one from ME
Dear Tyler: Thanks for the detailed updates! I’ve been sitting on top of my computer just waiting for your updates. Thank you!
I’ve said it before; I’ve got to say it again ... Hugs, Kisses, and tons of Love, Shorty