Wednesday, November 10, 2010

What color is your poop?

Hey y'all! Writing to you from the Children's Hospital in the Family Lounge.  We are just waiting for Madison's surgeon to come and have a look at the omphalocele, she was supposed to be here at 3:30 and it is now 7:30, but she assured us that she is coming.  Anyways, so this whole liver thing, has turned out to be something, but what we still don't know.  There are three causes that they have told us about, one being a problem with Maddy's anatomy like a kink, a cyst, or blockage in her bile duct.  The second is a viral, or bacterial infection that caused her to not secrete bile.  The third, and one of the worst in the group is a metabolic disorder, where Maddy cannot properly metabolize fats, or sugars, or certain proteins.  They have taken her blood 3 times (she has been poked 7, if only they had lab assistants like they do in Innifail!), they have sent away urine, and more is being collected now, she had one doctor come and take her poop away to look at it under a microscope.  Maddy also has now a new doctor team to add to her list, she is now a patient of the gastroenterology group. So we have been told today by that team that if they do not get any answers soon, the they will be most likely performing a liver biopsy...(you can gasp if you want to, we did!)  Anyways, hopefully it will not come to this but only time will tell.  The biggest concern right now is that she may have some condition that causes scaring in the bile duct, which gets progressively worse with time, so they need to find out if that is going on or not.  If it is they she will have to have surgery to remove the bile duct, and move up the intestines so that the bile from the liver can dump directly into the intestines, and be secreted like normal.  This is the worse case scenario, and the doctors are not leaning towards it right now, but they just wanted us to know why the liver biopsy is on the table,  and why it is so critical for it to be done soon. Anyways, the best case scenario is that the TPN (the nurtrients that got injected into her PICC) irritated the liver, and then with another underlying infection or irritation caused some sluge to build up in her system, and now the liver is having a hard time getting rid of it.  All we know is..well...nothing at this point, all that we do know is that all of this stuff started because of some pale poops, who know that the color of your poop could mean so much!

2 comments:

  1. Yes - who knew? Here's wishing the new team quickly figures things out WITHOUT a biopsy and that Madison is back on the road to home!
    Love, John & Dalphine

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  2. Here’s hoping it’s just the TPN that caused all the problems, and I’m sending even more prayers it’s corrected PDQ!! Fingers and toes crossed this shitty situation turns rosy!!!! I’m also sending extra hugs, kisses and love. Shorty

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