Sunday, October 10, 2010

And now what you've all been waiting for...

Hello all, we got home last night and Tyler told you all that I would be writing a post, but I was too tired, sorry!  Anyways, we came home last night after assisting with Madison's dressing change which Tyler told you about.  We got home and it was a pretty uneventful night, just pumping milk, and pain management.
  So Madison is beautiful and perfect in pretty much every way!  She never actually cries she just kinda makes a little squawk, once in a while.  She was 6lbs 1oz, 47 cm long, with a head circumference of 33cm.  She was born at 4:47pm on October 6, 2010.  So far she has had an echo-cardiogram, a abdominal ultrasound, a spinal ultrasound, and blood work (with the blood work they shaved part of her head, she has the softest hair). The results are:  with the heart she has two holes, one very small, and the other larger but not super huge.  They said that the smaller will likely close up, or cause no problems, and the other may need some repair work in the distant future, but not necessarily open heart surgery like previously discussed!!  We are sooooo amazed!  They said that they may be able to put in a catheter into the heart and place a patch on the hole!  With the abdominal ultrasound they found that she has some swelling on one of her kidneys, but they said it can be just a normal occurrence, but it is something that they will keep and eye on.  The spinal ultrasound was done because apparently babies with omphaloceles can also have spina bifida, which is when parts of the spine do not fully close over the spinal cord, leaving the cord protruding through the bones, pretty serious!  But little Maddy's spine looks great! yay!!  The blood work was just a basic complete blood count, and they were going to send some kind of clotting factor, but it clotted before they could get it tested, so I guess no clotting problems!!  
Right now Madison is not allowed anything by mouth, she is getting all her nutrients through her PIC line. So because of her having nothing by mouth, her lips have gotten really dry, so they were going to use sterile water to  wet them, but the nurse we had suggested using some of the colostrum for her mouth. She liked it, she couldn't have any in her mouth, but once she had it on her lips she was sucking her soother like nobody's business! However, now that we have a different nurse the mouth care has changed to sterile water, don't ask me why!  GRRR!!   She also has a tube in her nose, which used to be in her mouth, and the tube sucks out everything that goes into her stomach, just in case there is a blockage somewhere in her intestines they don't want anything getting past her stomach.  Being the little trouble maker that she is, they had to put socks on her hands because she keeps trying to rip out the tubing.    So now here she is.....



3 comments:

  1. Welcome home Meaghan! Thanks so much for the updates - good news indeed about her heart! So amazed and glad that she is healthier than anticipated. She truly is beautiful in every way! And of course, with Tyler and Meaghan as parents - playing to win comes naturally - no surpise she's ripping out tubes at every chance! All our Love, John & Dalphine

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  2. Beautiful!!!
    Glad things are going a little better then expected!
    You can sure see both of you in little Madison.

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  3. Hi you lucky mom and dad,
    What a beautiful little girl you have. I just got out of camp and was so excited to hear your news. Sending lots and lots of special wishes for wonderful days together.
    Aunt Wendy

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