Madison is still doing great! Her tubing that was is sucking out her stomach contents was irritating her stomach, so the tubing was sucking out quite a bit of blood, but now that has all cleared up and she is off of her medication for that. They did a blood culture on her when she was first born, and until the results came back to be safe they put her on antibiotics. The results came back, and her blood has no bacteria, so they had taken her off of her antibiotics. However, today we arrived and they had put her back on her antibiotics because the doctor wanted her on them for a full week, and they took more blood for cultures today. Yes, that means they shaved more of her beautiful hair!! The hair that I suffered with acid reflux for so long for her to have! The reason that they think maybe she has an infection is because her temperature was a little high, and by little I mean like half a degree!! The nurse practitioner told us that they are always going to be too cautious with Madison because of her omphalocele, she also told us that she was under the impression that they weren't going to start her back on her antibiotics until the results from her blood cultures came back. Apparently, Madison's nurse never got the memo and started her back on the meds....communication between staff would be nice. Anyways, there isn't much we can do, we just have to rely on the fact that they know what they are doing.
Today, we again helped with the dressing change of the omphalocele, things were done a little different, but I think the changes were for the better. They were just small changes in how certain layers were put on the sac, and the support doughnut that went on the top around the base of the omphalocele used to be two washcloths, is now two diapers rolled up. It looks funny but they are a lot softer on her skin. After the dressing change Tyler got to change Madison's diaper; it's so funny how we are both so excited when we are even allowed to do that! Once Maddy had a clean bum, we help the nurse weigh her. We all worked together to lift her on and off of her isolet so that her bed could weigh her. That was the closest we have been to getting to hold her. Pretty sad that she is 5 days old and we haven't even held her yet. Makes me cry just thinking about it. I feel like she isn't even ours yet.
During the dressing change the nurse gave Madison some sugar water (even though I am pretty sure she wasn't supposed to) to calm her down. I was holding her hands up away from the omphalocele, and she found my finger and started sucking on it!! She sucked on my finger for quite sometime, it was the first time I felt like she and I had actually bonded, it was the best moment ever!
Anyways, I better start to get ready for bed seeing as it seems to take me forever now between the pumping, and the pain. Love you all!
P.S. Thanks to our wonderful neighbors who brought us some flowers, and some delicious stew and buns; which we had for supper tonight!! YUM!!
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| Here is a picture of that magical moment I was telling you about!! |
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| Madison yesterday holding onto the teddy that I spent 2 day with it down my shirt to get my scent on it for her. |


Wow! Your words are SO touching - there are tears in my eyes as I type this. Thank-you again for sharing such Very Special times with us! I'm sure Madison recognizes her mom & dad's voices, just as I'm sure she knows how much you both Love her. Won't it be more than Wonderful when you two finally do get to hold her! Mountains of Love, Dalphine
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