Should I stay or should I go?

Hello again, sorry for the long time with no writing, but I didn't really have anything new to report.  Madison was off her milk for the entire weekend.  They had her on feeds of 0.5ml/hr but she just threw that up.  They have tried advancing that tube that is supposed to be going into Madison's intestines, but all it does is curl up inside her stomach.  However, today they started the feeds again, well they tried to, but the tube that is now a total of 32cm into Madison's nose was clogged.  In fact, it was clogged so bad that they ended up having to inject coke into it.  Apparently, the coke will eat away whatever is clogging the tube, but it took the nurse practitioner at least 15-20 minutes to get the coke into the tube, so it must have been a large clog.  So they eventually got the tube running, and had Madison at 1.5ml/hr, and she seemed fine while we were there, totally settled...but as we know tomorrow will bring other things.  They started these feeds in hope that now that the tube has fluid running through it, it will find its way out of the stomach and into the intestines.  They have also started laying Madison on her right side because that is supposed to be the side that will lead out of the stomach, but as we know Madison's anatomy is a little bit different, so who know if that will work or not. This is that last step that they will make before sending Maddy for fluoroscopy.  Due to the feeding issues as of yesterday the word is out that Madison is going to be transfered to the Children's hospital sometime this week, actually today they said that is will probably be tomorrow, because rumor has it there is a bed with our name on it, but who knows what will happen by tomorrow.  Also, one other thing, last night Madison had two bowel movements, and one of them was quite large! (Mom, I know that this just made your day!!) Tyler and I think/hope that this will be that answer to the feeding problems, because Madison was tolerating her milk before, and then all of a sudden stopped tolerating we think that this is the reason, so now all her milk will digest with ease, and come out the other end, and not be thrown up!  I know that you are probably thinking it is pretty scary to be extremely excited about a bowel movement like we are, but when things come out that end that means something is working!!
  As you may or may not know we have been putting flamazine on Madison's omphalocele; flamazine is a medicine that they normally use on burn victims, it works as a topical antibiotic, and it also encourages the skin to  grow where there is no skin.  So in Madison's case, the flamazine has been put on the whole omphalocele and within the first application 95% of her omphalocele turned yellowish, which is the flamazine doing its job.  By now the yellowish part is thicker and harder, which will help with the skin to come up the sides, and also gives the sac some strength.  There is, however, one spot on the top of her omphalocele that has never changed in color or texture.  Until recently that part was just flat and pink, nothing too exciting, but yesterday Tyler and I noticed that the pink part is bulging out, so the surgeon came to see Maddy this morning, but she never took off the dressing, so she never actually got to see that part.  During the dressing change today, we had the neonatologist, and the nurse practitioner look at it, they seemed a little concerned, so they phone the surgeon.  The surgeon said that she thinks that it is just a bowel loop, and that it is not anything to be concerned about, she also is confident that it will eventually granulate, and harden just like the other areas.  This is good!
So I guess we will find out if our little one is being moved to children's tomorrow or not, but I kind of hope so!  It seems that they have the best team for feeding problems, and also the surgeons will be able to see Madison daily instead of weekly.
Here are some pictures of Madison's grandparents, holding her for your viewing pleasure:

Grandma Diana

Grandpa Dan

Grandma Sherrill

Grandpa Tim