Yesterday my mom and I showed up to visit Madison, Tyler couldn't come because our furnace broke so he had to stay and fix it. It seems all bad things have to happen at once, first the furnace fan belt went, then the whole complete motor seized! He was pretty upset with having to stay here instead of coming to visit, but there is always tomorrow.
So when my mom and I showed up to visit we found out that last night Madison was crying all night, and not really being herself, so the nurse suctioned out her stomach, and found 30 cc's (close to 1 oz.) of milk in her stomach that hadn't been digested. Madison was on a continuous feed of only 5ml per hour, so having that much in her stomach was a red flag. And as you may have guessed they took her off of the milk, and now she is again to have nothing by mouth. It is one step forward two steps back, but we were warned of that. They said that they will try again tomorrow, so hopefully that will go better. Madison is so hungry though, when we were there she was trying to get a hold of anything so that she could put it in her mouth! She is also losing weight like crazy, I think she has almost lost a whole pound!!
Although Madison was up all night crying she slept all day until we got there, and they she was wide awake looking right into our eyes with her big eyes that somehow look right into your soul. She is just so beautiful!
Also, with the dressing changes that we do daily, Madison's omphalocele is measuring 5 cm from the top down. The other day Tyler and I seemed to notice that it looked smaller, so now I measure it during the dressing changes. Also the sac is turning yellow, and some parts are becoming very dark; the sac is still not hardened but it's getting there.
Hello!
ReplyDeleteTyler - broken things aren't fun - but aren't you glad you are able to fix them yourself!
Meaghan - hope your visit to your doctor yesterday went well.
Madison - lots of hugs and kisses from your Great Uncle John and Great Dalphine
PS - Elaine said remember the good days, because they help you get through the not so hot days! So true. There WILL be more good days!
Tyler and Meaghan! So, finally I have signed up to follow you and your endeavors to keep us all abreast in the blogging world of the Fenton family and baby Madison!
ReplyDeleteFirst - Congratulations on your beautiful baby girl! We were as excited as you with all the anticipation that a new life brings! We have felt all the same emotions as you - but from a greater distance. Your blog is a wonderful visit everytime we read your updates. For us, it helps us appreciate that life is so much more complex than we think and helps us put into perspective the things we take for granted. Baby Madison is the most lucky baby for having such great parents as you both! We know it has been a sometimes tense and scary process but you have proven to stay strong and we all admire you both for your courage and strength! We are so excited she is finally here and are thrilled to be able to be a part of your support group - whenever you may need it! We feel fortunate to be able to share your journey (even if only through your blog right now)! We know all three of you will get through this! Please know we are thinking of you and supporting you through every step of this journey! - your friends at JLT!!
Hi there!
ReplyDeleteI’m so sorry to hear the milk trial didn’t go as well as hoped. Poor Madison, it must have felt like when someone can’t eat for a week because of the flu, and then suddenly starts off with a 10 course meal. My tummy would have objected too! I’m crossing my fingers and saying a little prayer that the next trial goes better!!
Hopefully today is two steps FORWARD and no steps back!!! Lots of love, Shorty