This is a blog about our baby Madison who was diagnosed and born with a giant omphalocele in Calgary. This is the story of her journey from diagnosis at 20 weeks gestation, to the present day treatment of her giant omphalocele.
Monday, October 18, 2010
X-rays, blood gases, and suction..oh my!
Hi all! Well yesterday was another one of those backwards days. Madison was again taken off of her milk, and was not allowed anything by mouth! Apparently during the night the nurses were able to suck out quite a bit of milk from Madison's tummy, so they got scared and stopped her milk. Not only did they stop the milk they also thought that they should do some x-rays, which came back showing, what looked to them, like a dilated intestinal loop...whatever that means. So Madison was left with just her TPN, which is the nutrients that she gets from her PICC line. However, later in the evening when Tyler and I were there, Madison started spitting up quite a bit of "yellow stuff" (thats what Tyler and I call it), so the nurse paged the doctor, and he decide that they needed more x-rays..oh joy! Those x-rays showed no dilated intestinal loops, but it did show a big gas bubble in her stomach. The doctor then decided that they needed a blood gas, thankfully they were ok with just a capillary blood gas, so they just took blood from her heel. The blood gas came back very good! After that, the doctor decide that Madison needed her repogle tube back (which is the tube that was suctioning her stomach), but this time the nurse is going to put it in Madison's mouth instead of her nose, and she planned to use a bigger tube. This was the time that we left, there was no way I was going to watch the nurse shove a tube down Madison's nose or mouth! Earlier that night the nurse had suctioned Madison's nose out, and I couldn't watch that either, the sound alone was horrible. We were glad that they were going to put the tube back in to suction Madison's stomach out, because with her always being on her back, she could easily aspirate, or choke on the "yellow stuff". Amongst all this action, on a positive note, Madison did have bowel movements, and she had great bowel sounds, so some of the contents of her stomach were making their way through, so she obviously has no obstructions, or problems in that way. Tyler and I believe that the reason that Madison had such a hard time with the milk feeds is that the nurses increased her feeds too quickly, they went from 1.2 ml per hour to 3ml per hour in 2 days! We believe that is too quick of an increase. The doctors believe that feeds as a whole started too quickly, and that she never should have been fed milk at all yet. However, as we have learned the opinions change as quickly as the staff, so by the next shift change we will have a new theory and a new plan of action. Until then...
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Oh My is right!
ReplyDeleteThe Medical Profession has Always been one with so many different opinions about the same thing! As parents - you two are doing great, and your theory is probably the Right One! Mom's and Dad's are tuned in to their own children and instinctively know what's what. By the time Madison goes home, you'll both be VERY good at medical care. Tons of Hugs, John & Dalphine
Shucks ... at least it wasn’t a major setback.
ReplyDeleteI’m not surprised Madison had gas in her tummy and is spitting up ‘stuff’. ALL babies get gas. It’s just that Maddy can’t get her burps bounced out of her yet. And if I eat, then lie down immediately afterwards, I burp up stuff too! I guess being stuck on your back can definitely have a down side.
Also, sometimes it takes a while to figure out what you‘re eating that may not agree with your baby. I know one Mom, who couldn’t eat tomatoes because it bugged her baby’s tummy. Another Mom couldn’t eat chilli (ya, the chilli makes sense! I can understand why that was a problem, tee hee)
And I think you two are right on the money about too much too fast. What were they thinking??
Fingers crossed today’s two more steps forward! Love Shorty
Hey Meaghan and Tyler!!! Congratulations on such a beautiful daughter!!! Trust your instincts in regards to her treatments and such they are usually right! Have some meals for you so if you let me know when you are going to be home I can drop them off. Miss you at work hope to see you soon!
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